Saturday, April 13, 2013

HAWMC Day 13: Health Acrostic

I thought I would try to  do today's prompt from Wego Health and it was harder than I thought it would be.

Today’s Prompt:
  • Write a health acrostic for your condition, hashtag, or username! (acrostic = a poem where every letter of a word serves as the first letter of a word or phrase i.e. DOG = Digs Others’ Gardens)


The first challenge is what word to pick?

a) I really have not gotten into twitter -- so no hashtag.

b) Username? Well  I think they mean my blog title and Leading a Healthy Life seems too long and therefore too much work.

c) My condition seems a bit complicated for a word choice. Nothing was straight forward in the diagnoses, therefore stroke is close but not exactly the accurate term for my condition so brain injury maybe?  Vestibular disorder? Perceptual issues? Cognitive impairment? Left side weakness?

It struck me that is not how I would choose to label myself on the good days. 
I would like to describe myself as a....
Strong
Unique
Resilient
Versatile
Identity
Voice
Organized
Resourceful

 

Wednesday, April 3, 2013

Surviving the College Course


I have been a busy person for the past couple of months. I am looking into employment and retraining options for the future with the help of SMD (the Society for Manitobans with Disabilities) and this has led me on several adventures over the past year but the past two months have brought the largest set of challenges. I went back to school and I also started volunteering at a hospital to gain work experience.

I completed the ten-week college course in Interpersonal Communication that I started in January. How did that turn out? I don't have the final mark yet but I expect to have passed comfortably.  I completed 4 short papers and wrote two exams. The first half of the course was an exercise in fitting in and getting back in the grove. I quickly became aware of some major learning problems that did not exist before my health issues started. I used to read a lot and be able to easily remember what I read or heard. That is just not easy anymore. The course had a rather good textbook that was set up with an accompanying online version of the text and a lot of extra study aides available online and boy did I need them.

The teacher is a nice guy with a true desire to educate his students. 
In class there were a lot of small group activities and he managed to let me stay put and have the small group come to me so I didn't need to get up and down all the time. The class room was a very "busy" place from a sensory point of view. There was a heater going, a buzz from the lights and a lot of wiggly classmates. I picked a seat to the left side of the room near the front and that helped a lot since I seem to see and hear a lot better when the action is to my right "good" side.  I had trouble catching everything the teacher was saying, especially if he turned his back to write on the board or talked faster when he got passionate about a topic. He has his own issues with hearing loss and was understanding and more than willing to make every effort to accommodate me.

I found that, even though I usually feel like my language skills and short-term memory are adequate for everyday life now, my language skills fell apart when I needed to learn so many new terms. The course had about 25 fairly complicated vocabulary words a week and I was really struggling. I understood the concepts but word retrieval was absolutely eluding me.  Even if through some miracle I recalled the new word, I might have trouble actually articulating it during class, sort of like a stutter. 

The saving grace for me was that the online resources had a lot of games like memory matching games. …find the card with the word and march with a card with the definition. There were vocabulary crossword puzzles, vocabulary sheets, examples of videos using the skills, and practice tests for each chapter. I worked so hard!! Even with all that my recall was extremely hit and miss. The reason I will have done okay on the exams is because the exam format was multiple choice.  Aha! Apparently I can recognize the word and understand it.  On-line practice fill in the blank tests were miserable.  My midterm exam mark with multiple choice was great.

Reading the textbook was a massive challenge too. I have worked and worked over the past 4 years to get my reading level back up again but it is still difficult.  The muscles in my face do not work evenly so my left eye tracks across the page slower than my right and with a little bounce. Reading this photo rich textbook, for content, was taking me as much as 7 hours actual reading time to get through 30 pages and for every hour of reading I would need to stop and rest my eyes for another hour in order to recover from the growing headache and accompanying nausea. 

The partial solution to the reading issues was that online version of the textbook. I had my textbook open with a highlighter pen in hand and I had my computer read the words to me. [On my MAC you highlight the text you want read and then hit Option plus Escape]. I highlighted anything in the book that I needed to review later in order to work on remembering or comprehending the material. I closed my eyes and listened through examples and basic information.
The formatting style of the textbook made this difficult too. The computer reads straight down the page as printed, including tables and pictures stuck in the middle of text passages. This is also not easy because you can't take your time when reading the hard concepts -- the computer voice plods on with or without you.

I still hope to go to college and take more courses in September but I am starting to become aware of how many barriers I will be facing. I have an appointment with a Disability Counselor/ Social Worker at the college to discuss my options for modifications or assistance in the future. Next time I might not get a multiple-choice exam!

The volunteer experience component of my back to work program overlapped with the last two weeks of the college course. My ability to study and focus plummeted and fatigue won out. I am sure my second terms marks will reflect my exhaustion.

Am I glad I did the course? You bet!


I found it hard to keep to the page limit in the papers I had to write for class. I always want to write too much!

Therefore...

I will save writing about my volunteer experiences for another day!

Monday, April 1, 2013

April Blogging Plans

I have been pretty busy and have neglected blogging but I do miss writing in mine and reading other's blogs.  One of the things I have been thinking about is how to restructure my various blogs and I have closed a couple of my small  blogs and I am now thinking about  opening new one just for fun. I will not be making any major changes with "Leading a Healthy Life" other than to spend more time here.

It is time for the Health Activists daily blogging month once again and I have debating participating this year. Last year I got a lot out of participating in the challenge but I also burnt out a bit doing it. This year I  have decided that I will participate but that I need to take days off each week. Another thing is the great daily writing prompts that WEGO provide are not always the best choice for me on a given day and sometimes I have other things I want to talk about!

Today is kind of a tired day for me.  It is all about finding balance in order to make the most of my energy reserve. We had a lovely Easter dinner for 11 yesterday and it  went very well with lots of help from my daughters and my husband Bob. Today all I have done is nap during the day, watch TV, sort through a few papers and this evening Bob an I attended choir practice for our Scandinavian community choir.  Tomorrow I will be very busy volunteering with three different groups....  but that will be a story for tomorrow.






Tuesday, February 26, 2013

Me? Going Back to School?



 I have been keeping busy with all kinds of different activities but my main focus has been to gradually progress toward getting back to work. 

I was accepted into a re-employment program a year and a half ago and we have been trying to find out what would be a good job for me now. I did aptitude testing, I took a computer course through them and I have gone with my job coach to interview a variety of people about what their jobs are really like. 

The re-employment program is currently trying to find somewhere for me to volunteer in order to get some real life experience and investigate what might be a good field for me. They want me to volunteer or job shadow for about 12 to 15 hours a week for a minimum of a month in order to prove that I could eventually work part-time. It is possible that if I meet these requirements I might qualify for some government education subsidies.

Last October my case manager and I met with a Disability Counselor at our local community college. We talked about the option of my entering a program at the college and we had a good discussion about what kind of supports I could expect from the college. I also told her the program that was most interesting to me is a certificate program called Recreational Facilitator for Older Adults and we discussed how employable I might be after completing the program.

They have made recent changes and that Rec Facilitator program is no longer being offered on a part time basis so the only way I can get the certificate will be by going to college full time for 9 months starting next September.  It turned out that a couple of the classes I would need to take were offered in other part time programs and the counselor suggested that I take one course and see how it goes. If I do go on next year it would be transferred over and it would make next year a little bit lighter. Everything looks very promising, but I must admit that the thought of being a full time student is very daunting to me.

I am currently taking a course called Interpersonal Communication. The class is from 6:00 to 10:00  one evening a week for 10 weeks. I have made it through 6 evenings, one mid term exam and two assignments.

I am not sure where this will lead, but so far, so good!




Monday, December 31, 2012

New Year's Resolutions?

It is New Year's Eve and, according to the assortment of blogs that I follow, bloggers reflect on the joys and sorrows of the past year, or make resolutions for the upcoming year that will improve their future lives.

I actually have switched my thinking since I got sick. Sure I still have my big and little goals set up but I have a different sense of what is realistic now. I still want to lose weight and get my finances in order but I see it with a sense of moderation.  I used to be the kind of teenager who decided to learn a piano piece and worked very hard for several days and decided it was not perfect so what is the point in continuing working so hard. I would give up. I tended to not hand in homework because I wasn't finished but the truth is there would always be more to fix and I didn't grasp the concept of good enough. I think my new big life lesson is that where I am is great and doing "better" is wonderful. Who cares if it is perfect? What I do care about now is that I keep on moving, learning, and trying new things.

I embrace the concept of a "bucket list" but my list continually evolves with time, and I do not really expect to do everything that I might write on my list.

 In the first months post brain injury, while I was mainly restricted to lying in my bed, my daughter bought a movie to watch on my new laptop computer. The Bucket List with Jack Nicholson and Morgan Freeman is the story of two men with very different life experiences who meet in a shared hospital room and wind up creating a shared list of things to do before they die. They proceed to carry out items from the list together. Their list included great activities like skydiving, great travels like going to the Taj Mahal, and great ambitions like "help a complete stranger for a common good".


My resolutions for 2013 - 
Be kind, find joy and be open to new adventures.


The trailer for the movie "The Bucket List".






Here is a really intereting "TED talk"  on the topic.






Friday, November 30, 2012

Puppy!

The most exciting thing happening around here is that my daughter got a puppy.

This puppy is an adorable ball of energy and my own little tripping hazard. We had two dogs when the kids were little but my two younger daughters, who are still living at home, came after the puppies so they did not know what life with puppies is like.

Emily has been wanting a dog for a long time, but with my heath issues the idea of a new pet went right out the window.  Last year we got a new higher fence around our backyard so that meant one of my requirements of puppy ownership was met. I really thought that my old wood floors should be redone and sealed against puppy accidents but that never happened.

Emily has been researching dogs to find the right one for our family.
  • I have allergies to the oil on dogs coats so I need to have a dog that is more the fluffy type.
  • we needed a dog that will be good with the grand-kids who are over frequently.
  • we needed a dog that will keep Emily company on long walks and fun activities.
  • we need a dog to be a family pet and not just a one person dog.
  • Emily thinks she wants to show the dog and perhaps take part in things like agility trials.
She found a breeder nearby who had pure-bred Samoyed puppies from champion stock parents.
We visited the breeders at their home a couple of times and were thrilled with the mommy dog and her adorable 5 little balls of fluff.

Two weeks ago the breeder delivered an eight week old little boy puppy to our house.  Life changed instantly! He is very smart and cute and he has won our hearts.

Emily named the dog Jasper and she is working on teaching him the basics like sit and to go outside to pee. He needs a LOT of walking as he is really high energy.

I complained to my girl friend that I can't manage to take a turn walking him because the sidewalks are slippery and the dog pulls on his leash, tugs, bounds and runs under legs. My family is working on getting him to walk nice on a leash but it is going to take a while before he will be safe for me to walk with.  My sweet friend reassured me that I am getting plenty of exercise with puppy by rushing to get him out the door to prevent "accidents" and that sure it the truth. I need to get working on my old physiotherapy exercises and work on my stamina again ... so that I can try to keep up with Jasper.










Monday, October 29, 2012

Older and Wiser?

I just got home from the dentist and my next appointments will be with an oral surgeon.

I have needed a lot of repairs done and it is just keeps getting worse.   I have never had really great teeth, but issues with my face have aggravated the situation. I have some amount of drop in the left side of my face and altered sensation.  I had a bit of speech therapy early on to physically get my tongue moving better and work on moving my lips properly.  I tended to choke sometimes when swallowing and I was always biting my cheek to the point of bleeding.  My bite is now off  too and that mixed with some facial spasms have resulted in several cracked teeth and it looks like I am about to need a couple of them pulled along with some other major repairs.

Today I questioned the dentist about a spot that had been hurting on the gum at the back of my "good"side.

It looks like I have cut a somewhat undersized wisdom tooth in the past two weeks!  I am in my mid 50's and just cut a tooth! My almost two year old grandson and I have a lot in common this month.

Yup, it's true... after all this I am apparently a whole lot older and a little bit wiser.

Here Comes the Sun

The warmth of the past couple of weeks has caused the snow to melt here in Winnipeg. The grass is getting greener and there are birds return...